Oh Audrey Sue: One Word...

My given name is Audrey Sue, others call me Princess, Angel, Sweet Baby Girl,the list goes on... I was born with a rare genetic disorder, Grieg's Cephalopolysyndactyly Syndrome. The three main traits are Hydrocephalus, Polydactyly (I have an extra little piggy on each foot - they had left over roast beef), Syndactyly (webbing of fingers and toes). I was also born with Atypical Bilateral Clubfeet and spent the first year of my life in casts or full-time brace-wear,Bilateral Hydronephrosis and have developed Moderate Hearing Loss in both ears. I'm also in daycare full-time while Mommy and Daddy work full-time. We live a busy life but Mommy and Daddy say it's all worth it for the "sweetest girl in the world"!!

One Word...

2 comments: